The World Federation of Hemophilia (WFH) Humanitarian Aid Program is an initiative aimed at improving access to treatment for people with haemophilia and other bleeding disorders, particularly in developing countries where resources and medical infrastructure are limited. This program provides life-saving medication and supplies to patients who might otherwise have no access to adequate treatment.
The WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much-needed support to national member organizations (NMOs), haemophilia treatment centres (HTCs), and healthcare practitioners (HCPs) in emerging countries.
Key components of the WFH Humanitarian Aid Program include:
- Donation of Treatment Products: The program facilitates the donation of clotting factor concentrates and other essential treatments to individuals in need. These donations come from pharmaceutical companies and are distributed to countries where they are most needed.
- Sustainable Care: Beyond immediate aid, the program works to establish long-term, sustainable care by partnering with local healthcare providers and organizations. This includes training healthcare professionals and improving local infrastructure to better manage bleeding disorders.
- Capacity Building: The program focuses on strengthening the capacity of national hemophilia organizations and healthcare systems. This involves training, education, and the development of comprehensive care centers that can provide ongoing support and treatment.
- Advocacy and Policy Support: The WFH advocates for policy changes and the implementation of national treatment programs to ensure that people with hemophilia receive the care they need. This involves working with governments, health authorities, and other stakeholders to prioritize bleeding disorder care.
Overall, the WFH Humanitarian Aid Program aims to close the gap in care and treatment between developed and developing countries, improving the quality of life for people with haemophilia worldwide.
